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TOPIC: Care Data to be sold to Highest Bidder. Act Now!!

Care Data to be sold to Highest Bidder. Act Now!! 21 Jan 2014 21:00 #1

  • Paul Tootall
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Before YOU allow you and your children's health records to become available to the highest bidder.

OPT OUT NOW!!! It's YOUR duty!!! Go to the link below and follow instructions.

www.care-data.info/

Spread the word with EVERYONE YOU KNOW.....
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Care Data to be sold to Highest Bidder. Act Now!! 21 Jan 2014 21:27 #2

  • cantata
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Cheers Paul. :thumbup:

I've put the link on my FaceBook page (it might as well be used for something beneficial) but seeing as I'm a Norma No-Mates with only 31 "friends" there won't be an influx of people barring access to their medical records. Hopefully, those few will pass it on.

:)
"...Wyrde saves oft the man undoomed
if he undaunted be....". (Beowulf).

"The most beautiful people we have known are those who have known defeat, known suffering, known struggle, known loss, and have found their way out of the depths... Beautiful people do not just happen". (Elisabeth Kubler-Ross).


:cavalier
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Care Data to be sold to Highest Bidder. Act Now!! 21 Jan 2014 22:40 #3

  • Paul Tootall
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Hehe... you have more friends than me, I am only on FB to fried my daughters to keep an eye on what they are doing. Otherwise I wouldn't be on there at all.
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Care Data to be sold to Highest Bidder. Act Now!! 23 Jan 2014 22:43 #4

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I can't begin to describe the hurdles masquerading as incompetence for an expat to lock their data. Cheers Paul
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Care Data to be sold to Highest Bidder. Act Now!! 31 Jan 2014 15:39 #5

  • Di
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WOAH!!!!! doesn't this breach the healthcare confidentiality policy?
Support free software....Free as in Freedom !
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Care Data to be sold to Highest Bidder. Act Now!! 01 Feb 2014 21:20 #6

  • Chuck Random
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Di wrote:
WOAH!!!!! doesn't this breach the healthcare confidentiality policy?

It's an interesting question. It's "pseudoymised" so it's not direct personal details but I know of other "pseudoymised" data (for monitoring purposes) that is collected that consent needs to be given for. But given there is an opt-out option, it would likely be argued that failing to exercise this would constitute "implied consent". So I reckon it's basically a case of counting on people being too busy to/not being arsed to harass their GP surgery to have lots of luvverly saleable data.
No War But The Class War
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Care Data to be sold to Highest Bidder. Act Now!! 01 Feb 2014 23:07 #7

  • Strider77
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I sort of understood there were two things going on- two database compilations.

Patient care summary and summary Care record.

I gave two letters to my local surgery - dealing with dissent from secondary use of GP patient identifiable code - and dissent from disclosure of personal confidential data by Health and Social Care Information.

My surgery hadn't a clue what I was on about - had to phone 'Head office' -and then accepted the letters

I have stamped signed copies of my letters.

I then get a leaflet thro the door - NHS - better information means better care ' (notice the ''it's good for you mantra - deffo means selling your data - rehypothecating your strawman)

The leaflet says that you are essentially deemed to consent - by virtue of doing nothing - but if you have questions or want further info- talk to your GP.

No mention of non compliance and not consenting.

So, as someone who never visits the GP (and only goes to the surgery to post pamphlets re smart meters -pharma scams and the like) it looks like another visit is due - just to reinforce my non-consent letters.
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Care Data to be sold to Highest Bidder. Act Now!! 01 Feb 2014 23:59 #8

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Absolutely, Strider77. The GPs seems to know nothing about this - and my GP's receptionists are so fekkin gormless I just know there will be visit after visit after visit until they "get what I'm even on about".

Our society is now so stupid, ignorant and tame that we are easy pickings, if not through our own fault then through the fault of those around us.
"...Wyrde saves oft the man undoomed
if he undaunted be....". (Beowulf).

"The most beautiful people we have known are those who have known defeat, known suffering, known struggle, known loss, and have found their way out of the depths... Beautiful people do not just happen". (Elisabeth Kubler-Ross).


:cavalier
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Care Data to be sold to Highest Bidder. Act Now!! 06 Feb 2014 15:38 #9

  • Strider77
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This issue now seems to have received more msm coverage.

They carefully do not outline clearly that there are TWO databases on the go
Summary Care Record
en.wikipedia.org/wiki/Summary_Care_Record

and NHS England database
Privacy groups have raised concerns about NHS England’s plans to create a single database of medical data collected from hospitals and general practitioners.

They warn there will be no way for patients to work out who has accessed their medical records or how they are using the information, reports the Guardian.
According to the paper, drug and insurance companies will be able to buy information on patients once a single English database of medical data is created later this year.

From March, NHS England will expand the collection of patient care data from hospitals to include general practices

www.computerweekly.com/news/2240212767/NHS-England-database-raises-privacy-concerns

GP rebellion over plan to share millions of patients' data
From spring, officials will begin building a giant database they say will help them identify poor performance such as long waiting times and late diagnosis of diseases such as cancer. They believe the information might even lead to new treatments.

But there is widespread concern among MPs, academics and doctors that the data will fall into the hands of hackers or be sold to insurers and drugs firms for use in targeting patients.

NHS England, which is overseeing the scheme, says privacy will be ensured because only dates of birth, postcodes and NHS numbers will be stored.
:roll:

www.dailymail.co.uk/health/article-2534325/GP-rebellion-plan-share-millions-patients-data-Fears-information-fall-hackers-hands-sold-drug-firms.html

As with the usual MO it's being portrayed as 'for our benefit and protection' - which seems to be the mantra since 9/11.............

and we know they are lying.
Last Edit: 06 Feb 2014 15:41 by Strider77. Reason: added info + link
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Care Data to be sold to Highest Bidder. Act Now!! 06 Feb 2014 21:28 #10

  • Strider77
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HOW TO OPT OUT

medconfidential.org/how-to-opt-out/
As of January 2014, NHS England is sending out a leaflet entitled Better information means better care (2MB PDF) via junk mail. It is not addressed directly to you as a patient and it deliberately doesn’t include an opt-out form. The leaflet says you should “speak to your GP practice” if you want to opt out. This is misleading and could waste your time and potentially waste valuable GP appointments.

All you need do is write a letter or download a simple form (link below) instructing your doctor to opt you out, which you can fill in and post or drop into your surgery reception for their attention.

Dr Neil Bhatia, a Hampshire GP, has written a leaflet with a tear-off form that you can use for yourself, your children and anyone for whom you hold enduring power of attorney:

DETAILS HERE:

medconfidential.org/how-to-opt-out/

NORTHERN IRELAND INFO

www.ehealthandcare.hscni.net/niecr/faq.aspx#changing
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Care Data to be sold to Highest Bidder. Act Now!! 06 Feb 2014 22:07 #11

  • Chuck Random
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Police will have 'backdoor' access to health records despite opt-out, says MP
David Davis says police would be able to approach central NHS database without a warrant as critics warn of catastrophic breach of trust



The database that will store the entire nation's health records has a series of "backdoors" that will allow police and government bodies to access people's medical data.

David Davis MP, a former shadow home secretary, told the Guardian he has established that police will be able to access the health records of patients when investigating serious crimes even if they had opted out of the new database, which will hold the entire population's medical data in a single repository for the first time from May.

In the past, Davis said, police would need to track down the GP who held a suspect's records and go to court for a disclosure order. Now, they would be able to simply approach the new arms-length NHS information centre, which will hold the records. "The idea that police will be able to request information from a central database without a warrant totally undermines a long-held belief in the confidentiality of the doctor-patient relationship," he said.

The records will include mental health conditions, drugs prescribed, as well as smoking and drinking habits – and will be created from GP records and linked to hospital records.

Ministers have defended the incoming system – which supporters say could bring huge benefits to care and research – saying it has mechanisms to de-identify records and a series of committees which will consider requests from thinktanks, businesses, universities and government bodies, as well as offering opt-outs for patients concerned about the use of their data.

Opting out of data sharing outside the NHS will not prevent records being sucked up and state agencies in some cases will be able to get access to them.

In the case of the police, officers will be able to request all of the medical data held for specific suspects with their correct identities, regardless of whether they had opted out.

With a national database in place, the request only has to be considered by officials at the information centre, who will not know the patient personally.

Davis, who established the existence of these "backdoors" in a parliamentary question answered by health services minister Dan Poulter, said he had "no problems with the data being used for licensed medical research, but when we have police accessing from a database that people have opted out from, and companies being able to buy this data, I think we need to have a debate about whether my property, which are my patient records, can be sold and used".

Advocates say that sharing data will make medical advances easier and ultimately save lives because it will allow researchers to investigate drug side-effects or the performance of hospital surgical units by tracking the impact on patients. But privacy experts warn there will be no way for the public to work out who has their medical records or to what use their data will be put.

The extracted information will contain a person's NHS number, date of birth, postcode, ethnicity and gender. Once live, organisations such as university research departments – but also insurers and drug companies – will be able to apply to the new Health and Social Care Information Centre (HSCIC) to gain access to the database, called care.data.

Last year it emerged that the private health insurer Bupa was among four firms that had been cleared to access "sensitive" patient data.

If an application is approved then firms will have to pay to extract this information, which will be scrubbed of some personal identifiers but not enough to make the information completely anonymous – a process known as "pseudonymisation".

Speaking generally about the new system, Davis said that medical records were a person's "fingerprint".

"I have had my nose broken five times. Once you know that, I am probably in a group of 100 people in England. Then you figure out when I had my diptheria jab, usually done at birth, and bang you got me. Let me be clear: people can be identified from this data."

This week, the Information Commissioner's Office warned that information provided to patients on care.data was not clear enough about how to opt out of the programme.

Brian Jarman – the co-founder of Dr Foster, the healthcare information provider, and professor of health economics at Imperial College – said the system should be "opt in, not opt out". He said: "There is simply too much data and the risks that something leaks are too great. We need to slow this process down to ensure we have the right checks in place."

Phil Booth of medConfidential, which campaigns on medical privacy, told the Guardian: "This is precisely the danger when you create a giant database of highly sensitive information about people – all sorts of other people want to go rifling through it, including the government." There's always another good reason to go digging, but no one thinks of the catastrophic breach of trust this represents."

"The lack of independent oversight and transparency is what's most worrying. People trust their GP, but who's heard of the Health and Social Care Information Centre or the four people who sign off on access to all our medical records?"

A Department of Health spokesperson said: "There are strong legal safeguards in place to protect patients' confidentiality. If people do not want their data to be shared, they can speak to their GP and information will not leave the surgery. Any release of identifiable data without consent would only be in a very limited number of exceptional circumstances, where there is a clear basis in existing law – such as for the police to investigate a serious crime."

www.theguardian.com/society/2014/feb/06/police-backdoor-access-nhs-health-records
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Care Data to be sold to Highest Bidder. Act Now!! 06 Feb 2014 22:28 #12

  • Strider77
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^^

Shit - it just gets worse!

And when you consider how plod 'police' their own data-

as per here:

www.real-whitby.co.uk/savile-deleted-intelligence-reports
truth-zone.net/forum/news-and-current-affairs/63091-more-pedophile-info-emerging.html?start=20

Then you really have to question exactly how this will all be used.

Wonder if MP's and public servants are exempt? *innocent face*
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