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TOPIC: The engineer who fixed his own heart and others

The engineer who fixed his own heart and others 20 Nov 2013 22:16 #1

  • diamondgeezer
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www.bbc.co.uk/news/health-24524027

As an engineer, Tal Golesworthy is no stranger to taking things apart, figuring out what the trouble is and putting them back together with the problem solved.

But for more than 30 years, he lived with a life-threatening issue that was less easy to fix.

That is, until he took an idea from the garden, combined it with some basic procedures borrowed from the aeronautical industry and came up with a "beautifully simple" solution to treat his own heart condition.

He then managed to convince surgeons to put it into him.

I have spent my entire professional life project managing various projects but of course this one was completely different. It was me that was going to be on the slab at the end of it.”

And nine years since his operation, the 57 year old engineer from Gloucestershire in the UK, has managed to help over 40 people with similar conditions.

Andrew Ellis, a keen footballer, has benefited from Mr Golesworthy's inventiveness.

At just 27 years old, Mr Ellis said it was daunting to put himself through an experimental medical procedure experienced by so few, but he was glad he did.

Five years after his surgery, he remains fit and healthy and "feels like someone without a heart condition".

Mr Golesworthy, is now calling on surgeons across Europe to start a trial and test his device against more conventional therapy.

Like Mr Ellis, Tal Golesworthy has Marfan syndrome - a disorder in which the body's connective tissues are faulty. These tissues normally act as scaffolding for the major organs, ensuring they are kept in shape and in place. But people with severe forms of the syndrome can have problems with their eyes, joints and particularly their hearts.

'Crude and simple'
As the heart pumps blood around the body, the aorta - the main vessel from the heart - stretches to accommodate the blood-flow. In most people it relaxes back to normal size, but for people with Marfan syndrome it can fail to recover, gradually enlarging over time.

From an early age, Mr Golesworthy was fully aware he was living with the risk his aorta could one day stretch so much it would burst. And during a regular check-up in 2000, he was told the time had come to consider pre-emptive surgery.

But he was "unimpressed" with the options available to him. Traditional surgery is lengthy and complex and includes replacing the stretched segment of the aorta with an artificicoal graft. Sometimes surgeons also have to put metal valves inside the heart to replace ones that are cut out.

But having metal in his heart would mean Mr Golesworthy would have to take blood-thinning medication for the rest of his life to ensure a smooth blood-flow. And this medication carries the risk of bleeding from even a minor fall.

As an active person and keen skier, this was a side-effect Mr Golesworthy was unwilling to tolerate.

He says: "I didn't want to have to live my life in a cotton wool cocoon and I thought I might be able to come up with something less intrusive and complex that didn't require a part of my heart to be taken away."

So he engineered himself a solution.

His thinking was straightforward.

He says: "If the hose-pipe is bulging, I must get some insulation tape and wrap it round the outside of the hose-pipe to stop it bulging.

"It's that crude and simple, and we have all done it in our gardens."

Persuading surgeons he might be able to improve upon their techniques was not easy. But he managed to convince Prof Tom Treasure, then at Guy's Hospital London, and Prof John Pepper, of the Royal Brompton Hospital, London, that they may be able to learn a thing or two from engineering techniques.

'Tailor-made'
The process took a growing team three years to perfect. The result would be a personalised sleeve that is stitched snugly around the enlarged vessel, providing structural support and preventing it from growing any bigger.

The sleeve is made of a medical-grade mesh, using material that has been used to suture wounds for many years.

The team hypothesised that by putting the sleeve on the outside - rather than the inside - of the aorta, they would reduce the complexity of the surgery needed, there would be no need for anti-clotting drugs and there would be less time under the knife.

And four years on from its inception, they were ready for the next big step - Mr Golesworthy would be the first guinea pig for his device.

Although they had had several dry runs of the operation, he remembers it as the scariest day of his life.

He says: "I have spent my entire professional life project-managing various projects but of course this one was completely different. It was me that was going to be on the slab at the end of it."

The two-hour operation was carried out at the Royal Brompton Hospital. Nine years on, Mr Golesworthy's aorta has not grown in size.

"All of a sudden my aorta is now fixed, I began to breathe easy and sleep well and relax in a way that I hadn't done for years and years before," he says.

Mr Golesworthy says his motivation at the beginning of this project was entirely selfish, but the team has now been able to offer the tailor-made sleeves to more than 40 patients in London, the John Radcliffe Hospital, Oxford and the Leuven University Hospital in Belgium.
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The engineer who fixed his own heart and others 20 Nov 2013 23:12 #2

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Clever bloke!

It's quite common for the solution to a problem to be discovered by someone outside the "expert field". "Experts" are so caught up in what they have been trained to "know" is right and proper that they tend not to work outside the box. One of the best management techniques for voice hearing schizophrenics came from an "ordinary" GP - psychiatrists were too head down following the traditional route to "discover" or develop anything.
"...Wyrde saves oft the man undoomed
if he undaunted be....". (Beowulf).

"The most beautiful people we have known are those who have known defeat, known suffering, known struggle, known loss, and have found their way out of the depths... Beautiful people do not just happen". (Elisabeth Kubler-Ross).


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