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TOPIC: ME study, the Medical Establishment & the Government

ME study, the Medical Establishment & the Government 31 Jan 2014 12:51 #1

  • littleweed
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I said to jonb :flower: that I would put up something about scientific studies and how they are sometimes tweaked to get the desired result. Here is one such study.

All you needed to know about this (and more :umm: ) is in here
www.meactionuk.org.uk/magical-medicine.pdf


The PACE (Pacing, graded Activity and Cognitive behaviour therapy:a randomised Evaluaton) Trial was published in the Lancet in February 2011.

White PD, Goldsmith KA, Johnson AL, Potts L, Walwyn R, DeCesare JC, Baber HL, Burgess M, Clark LV, Cox DL, Bavinton J, Angus BJ, Murphy G, Murphy M, O'Dowd H, Wilks D, McCrone P, Chalder T, Sharpe M; PACE trial management group. Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome (PACE): a randomised trial. Lancet. 2011 Mar 5;377(9768):823-36. Epub 2011 Feb 18.

It was conducted by by the MRC, the Scottish Chief Scientist’s Office, the Department of Health (DoH) and the Department of Work and Pensions (DWP) . This is the only medical trial ever to be funded by the DWP. See the freedom of information request here:
www.whatdotheyknow.com/request/part_funding_of_the_pace_trial_b .

Here is a snippet of .gov's answer to the freedom of information request:" ...........one of the secondary measures considered as part of the trial, was the impact that the trial would have on ability for employment and study. We believe that the findings of the trial will contribute to the continuingly growing evidence base, which informs the development of health and work related policy, policy based on the large body of evidence showing that work is good for physical and mental wellbeing and that being out of work can lead to poor health and other negative outcomes."

As it was pointed out in the freedom of information request, there would be a public outcry if this was MS sufferers or people with Parkinson's disease.

Background:
It is important to understand that CFS/ME is an umbrella term used in the UK to replace and lump together ME, CFS, idiopathic chronic fatigue and the mental health disorder 'Fatigue Syndrome'. This term is not supported by the World Health Organisation (WHO) .

From Hooper's magical medicine pdf:
.......a group of UK psychiatrists and their adherents.....advise that the search for a single identifiable cause is meaningless ....the stated aim is to “eradicate” Myalgic Encephalomyelitis, a disease that has been classified by the World Health Organisation (WHO)
in the InternationalClassification of Diseases (IDC) as a neurological disorder (for the last 40 years, currently under Disorders of Brain at ICD‐10 G93.3 (to which in ICD‐10 the WHO specifically codes “chronic fatigue syndrome” (CFS), hence the use of the term ME/CFS to signify the neurological disease ME). This is a classification with which these psychiatrists disagree. Instead,
they believe ME/CFS (which they call “CFS/ME”) to be a behavioural disorder that is classified as a “fatigue” syndrome in ICD‐10 at F48.0 under Mental and Behavioural Disorders and that it is perpetuated by the “aberrant beliefs” of the patients themselves, and they seek to modify such aberrant beliefs using a programme of Cognitive Behavioural Therapy (CBT) designed by themselves, which incorporates aerobic Graded Exercise Therapy (GET).

These psychiatrists and their supporters, many of whom work for the medical and permanent health insurance industry, are known as the “Wessely School” [/b](Hansard: Lords: 9th December 1998:1013), a small but influential group led by Professor Simon Wessely from King’s College Hospital and the Institute of Psychiatry (IoP), London, whose intention is said to be to “eradicate” ME (Eradicating “Myalgic Encephalomyelitis”. Pfizer/Invicta: 4‐5 /LINC UP, 15th April 1992, Belfast Castle) by dropping “ME” from
“CFS/ME” when expedient (BMJ 2003:326:595‐597) and then to reclassify “CFS” as a behavioural disorder [/b]under syndromes of chronic “fatigue” under Mental and Behavioural Disorders at ICD‐10 F48.0.


There is an attempt to turn a biological neurological disease (Myalgic Encephalomyalitis) that is classified by the WHO as such, into an amalgamation with other assorted idiopathic disorders and reclassified as a mental and behavioural disorder. Not only that, this group of psychiatrists actually work for the insurance industry. These are the people carrying out the research.

The study itself:
The researchers used the Oxford criteria for determining ME in the study, which is their own criteria and not internationally recognised.

From Hooper's pdf

The Oxford criteria stipulate that people with “organic brain diseases” are to be excluded. ME is a
classified neurological disorder, therefore the correct application of the entry criteria would result in the
screening out of people with ME from the PACE Trial.


There can be no credible doubt that the Oxford case definition excludes those with neurological disorders
and as noted above, this was confirmed in 1991 by psychiatrist Anthony David (colleague of Simon Wessely
and co‐author of the Oxford criteria): “British investigators have put forward an alternative, less strict,
operational definition which is essentially chronic fatigue in the absence of neurological signs (but) with
psychiatric symptoms as common associated features” (Postviral syndrome and psychiatry. AS David.
British Medical Bulletin1991:47:4:966‐988).

So, basically they've screened out everyone with ME.........there's more, lots more but you get the picture.

But the media then report about ME militants giving researchers death threats etc see: www.investinme.org/Article-505%20PCC%20Complaint%20Aug%202011.htm

lost this the first time I posted it and had to write it again - not as detailed or tidy as it could be the second time around grrrrrr
Last Edit: 31 Jan 2014 13:44 by littleweed.
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ME study, the Medical Establishment & the Government 31 Jan 2014 14:48 #2

  • Paul Tootall
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Disinformation and collusion by everyone involved then. Looks like they don't want the link between ME and vaccinations and other contaminants getting out big scale.

If people keep on treating ME as a real disease then more and more people will look into a cure for it, and eventually someone will get out into the mainstream, not just the alternative, health movement. From what I have found ME seems to be caused a lot by aluminum, mercury and lead plaques forming on the brain, a lot like what happens with alzheimers patients. Please note, this is not medical advice, just things I have picked up from 100's of hours of looking into alternative health youtubes and websites.

This is just part of the whole thing happening though. There are other factors to, like EMF sensitivity, that are a factor.

So, if they can class it as purely "Psychological" then the White Coats have got you, can drug you up and away they go, keeping their dirty little secret to themselves, and profiting handsomely from a whole new range of products they can sell to a pigeon holed sector of the public.

Just look at this document about Acrodynia and compare it to Autism... then tell me they aren't covering loads up...

www.whale.to/v/Acrodyniacomp.pdf
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ME study, the Medical Establishment & the Government 31 Jan 2014 16:56 #3

  • littleweed
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I think this particular study was very specific in its aims. The DWP has never been involved in a medical study before. The Government wants to fob off as much real illness as they possibly can. I believe the new Personal Independence Payment (PIP) coming in to replace DLA, is gong to be very hard for people with 'generalised mental health problems' to claim the higher disability rate. People with ME are going to be left in a very vulnerable position if they don't have the wherewithal to get a good claim behind them. Also. as you say the psychiatric/psychology and pharmaceutical industry have much to gain too. The insurance side of this is a big cash cow.

What they have done is muddy the waters to such an extent that you could have 20 different people, all with different conditions having been given a diagnosis of CFS/ME. But to talk of Myalgic Encephalomyalitis (ME) specifically. I don't believe it's caused by metal contaminants. The symptoms are actually quite specific. Hooper, in the above pdf gives a very detailed overview. The Canadian criteria for the diagnosis of ME get the closest to it, but they never used that one because they wouldn't have got the results they were looking for.

I'm not dismissing heavy metal poisoning and EMF's as real modern day health issues that cause chronic illness. Funds to investigate and research these things will never see the light of day because they are all lumped together as some kind of mental health problem. ME has being used as a political weapon.

btw as an aside that Specific Carbohydrate Diet (SCD) is supposed to be amazing for autism, not sure why that is.
Last Edit: 31 Jan 2014 16:58 by littleweed.
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ME study, the Medical Establishment & the Government 31 Jan 2014 17:05 #4

  • Paul Tootall
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I have studied the GAPS diet, even bought the book on it, lent it to my mum at the moment, and that has some really good ideas, not just for Autism, but everyone. Our diets effect everything.
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ME study, the Medical Establishment & the Government 31 Jan 2014 17:19 #5

  • littleweed
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yeah, I bought it too. We find it hard to stick too for any length of time. But I suppose just trying is better than nothing. :)
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ME study, the Medical Establishment & the Government 31 Jan 2014 17:58 #6

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Eliminating sugar and sweeteners is easy to do, so is eliminating grains, I have a celiacs daughter, so it was fairly easy. You need t ocook from scratch all the time just about but once you are there, the odd little thing, especially if you are not Autistic or ADHD to start with is no problem, but I still find it effects my guts now.
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ME study, the Medical Establishment & the Government 02 Feb 2014 07:54 #7

  • I AM ALL I AM
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You cannot reason someone out of a position that they didn't reason themselves into.

When paired opposites define your beliefs, your beliefs will imprison you.


Flare = Censor & Promoter of Bishop Williamson

truth-zone.net/forum/research-zone-forum-feedback-and-faq/73338-flare-censor-promoter-of-bishop-williamson.html#357334
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ME study, the Medical Establishment & the Government 02 Feb 2014 08:34 #8

  • littleweed
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Mornin' I AM ALL I AM - I haven't done a lot of reading on the expanding earth theory, but it certainly makes good sense to me. The paradigm change would probably be as big as when the flat earth theory was abandoned. The double slit experiment is as pure a scientific experiment as you can get and they still argue about the interpretation!

I think there is a difference between those big global scientific truths and the even murkier world of the medical and social sciences. ME is a biological condition that is not being properly looked into or funded by the establishment. It's a disease that they just don't care to look into - of course they have their reasons for that.

In a way I think it's best for me that I try and focus on the stuff that I have seen personally, I can get very overwhelmed with it all otherwise..
Last Edit: 02 Feb 2014 08:50 by littleweed.
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ME study, the Medical Establishment & the Government 02 Feb 2014 09:25 #9

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What I am thinking about at the moment is a Ketogenic Diet, just to see. I am almost there with it to be honest, I would just need to totally eliminate the grains, as I do have the odd bowl of porridge, use oat biscuits for my cheese rather than crackers, and enjoy the odd pizza, also cut down oh the heavy carb veg like potatoes. Think you need to eliminate fruit to, due to the fructose in them to start, but you can have loads of other veg in it.

The funny thing was I have been thinking about this for a couple of weeks now, ever since I came across it, and in my inbox today was a mercole article on it haha...

articles.mercola.com/sites/articles/archive/2014/02/02/ketogenic-diet-health-benefits.aspx?e_cid=20140202Z2_SNL_Art_1&utm_source=snl&utm_medium=email&...006&et_rid=414788790

So might think about that one a bit more first.
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ME study, the Medical Establishment & the Government 02 Feb 2014 09:32 #10

  • Worzel
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But don't we need grains?
Aren't we designed to process them?
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ME study, the Medical Establishment & the Government 02 Feb 2014 10:21 #11

  • littleweed
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www.bodybuilding.com/fun/keto.htm
it's a big area of research Worzel, sorry, bit busy but this might help as far as ketosis goes - might not be a gr8 link

.........I'm really interested in this guy's work www.jackkruse.com/
sorry, keep adding to this post www.jackkruse.com/brain-gut-6-epi-paleo-rx/

.........www.jackkruse.com/easy-start-guide/ I actually tried this, but it was really hard to do, had loads of energy though

not a bodybuilder btw :chuckle:
Last Edit: 02 Feb 2014 11:10 by littleweed.
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ME study, the Medical Establishment & the Government 02 Feb 2014 12:06 #12

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Worzel wrote:
But don't we need grains?
Aren't we designed to process them?

Well Worzel, as I have said in the past, and having a daughter with celiac's and cutting out all grains myself most of the time myself I have found out quite a bit about them. Also after researching the GAPS diet/syndrome I have found out a lot about grains, historically and currently... essential link dump incoming...

www.cbsnews.com/news/modern-wheat-a-perfect-chronic-poison-doctor-says/

wellnessmama.com/575/how-grains-are-killing-you-slowly/

rpmftns.com/grains-the-delicious-poison/

preventdisease.com/news/13/052213_Modern-Wheat-Is-The-Perfect-Chronic-Poison-Says-Expert.shtml?utm_source=052313&utm_campaign=052313&utm_medium=email

(This is a GAPS presentation)
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ME study, the Medical Establishment & the Government 07 Mar 2014 15:03 #13

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Good info in this thread, thank you....
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ME study, the Medical Establishment & the Government 07 Mar 2014 18:56 #14

  • jonb
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Oh what I have missed.
You get my deepest personal thanks for posing his thread up littleweed, you don't know how important his information is to me. I have CFS/ME.
I have lost out all the way along the line, Since getting the first flu like symptoms it took 10 years of fighting to get a diagnosis. From personal experience I can see that every word is true. I can give lots of anecdotal evidence to support what is being said here.
It is interesting that no health staff have ever put on a form the correct start date I say when I first became ill, they always modify it to a shorter period of time for one reason or another. The question of when did my symptoms start is never on the forms I fill in, it is always put in by hospital staff. I wonder why?
Queens hospital Romford had its department closed even though it was the country's leading practice and replaced with a couple of part time therapists, The consultant leading the department returned to Canada. She told me she was risking her job to include me in getting help and nearly got me in before it was closed.
CFS charities were among the first to loose government funding after the crash, I know this, I know somebody who worked for the main one in Manchester.
There are very dark dealings at the back of this thing.
Last Edit: 07 Mar 2014 18:58 by jonb.
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ME study, the Medical Establishment & the Government 07 Mar 2014 20:09 #15

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Completely agree, jon. 30 years after I got sick, nothing has changed. Not even the revelation of a 1994 directive admitting a cover-up, and how GPs were instructed to ignore the symptoms and any possible cases of the illness. Prof. Malcolm Hooper spent years on an incredibly thorough expose of it all, and the response was deafening silence.

Anyone who wonders why all this should be the way it is, with no progress, no better attitudes and appropriate treatment towards sufferers, and often no benefits to help them struggle with a limited, painful existence, two words....one name............Simon Wessely.
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ME study, the Medical Establishment & the Government 07 Mar 2014 23:25 #16

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There is a can of worms here.
My mind is flying with this information, The way he wiki entry on Simon Wessely is written, I can see it is formed by a person used to disseminating political information rather than medical. So why would that be?
I have learnt a lot of new information here and I must thank every contributor to his thread.
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ME study, the Medical Establishment & the Government 08 Mar 2014 01:12 #17

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Can of worms it certainly is...and it stinks just as much...

Wessley's background is military complex, insurance, and doing governments' dirty work on restricting compensation and liability of same. US, Australia, and UK. Probably elsewhere too.

His wife is also the chief adviser to GPs in the UK....cosy or what :mad:
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ME study, the Medical Establishment & the Government 08 Mar 2014 01:15 #18

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ME study, the Medical Establishment & the Government 08 Mar 2014 14:45 #19

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Hi guys, yes, it's horrendous isn't it. Hard to believe really.

My daughter has had ME since she was 16/17. We had a bad time of it too, trying to get a diagnosis. We got one from Dr Sarah Myhill in the end up. A Doctor who has been struck off the register numerous times just for looking after the welfare of her patients and many others besides :roll: .

Suffice to say, it has been a major part of my understanding of how our society ticks and I was by no means green before it happened - just another brick in the wall...............
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ME study, the Medical Establishment & the Government 08 Mar 2014 17:24 #20

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I have been waiting for a good thread to start talking about my feeling on all these inflammatory conditions that cause suffering.

Maybe this is the one...
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