TOPIC: Exploding Head Syndrome

I have had this on and off for a few years now. Still get it but not as bad as it was.

I do have Chiari Malformation for which I had decompression surgery two years ago and also Ehlers Danlos Syndrome although I think its more likely to be more to do with the Chiari Malformation more than the EDS, there are some links between EDS and Chiari Malformation though. I think the Chiari Malformation is caused genetically and the EDS makes it worse.

I do think that these kinds of genetic illnesses are going to be an actual epidemic. I know more people with these than I know that caught and died of bird flu or swine flu combined.

Most of us with these illnesses are basically left to die, theres no cure, very little treatment that will make any difference and they can kill.

I only found out about it about 7 years ago when the shit really hit the fan for me healthwise and then found out my daughter has it. My mother definitely does although not as bad but shes in denial as is my brother who am sure also has it and I also worry about my niece too.

When I initially heard about these illnesses it was supposed to be so rare that only one in every 500,000 people had it but now its more like one in every five thousand although its likely even more common than that and its just underdiagnosed and ignored by the medical profession.

TOPIC: Exploding Head Syndrome

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I had that for about 40 years (migraines) which started with flashing neon lights in front of my eyes which blanked out one third of my vision, followed by a splitting headache.
Luckily the attacks only happened about every couple of months, and popping a couple of aspirins killed the pain.
But in the last year or two, although I still get the neons, I DON'T GET THE ACCOMPANYING HEADACHE ANY MORE, yeehaw!

The moral?- Migraines do sometimes clear up on their own in time..